“So how are you doing?” The beautician asks as she drapes the cape over my shoulders. Her vibrant smile is sincere.
“Not so good.” I say softly. The question is awkward and intimidating. I want to be truthful, but it is not a good day for me physically or emotionally. I truly hate the redundancy of complaining, but the pain is constant and my fatigue is overwhelming. I am loosing confidence and fighting depression.
She misunderstands my answer. “Oh, that’s nice.” She says, bubbling with enthusiasm, Her smile is even broader as she leans closer to begin the color treatment.
I force a grin. She makes an encouraging remark and praises me for my good attitude. Funny thing…I am smiling now. Nothing works better than a smile to uplift the spirits. Considering my recent challenges, I thank her for her concern.
For the past few months my life has been in a quandary. My illness has intensified. After a decade of searching for answers, I am off again on yet another path. I intended to blog more often. My mental confusion has kept me away from the keyboard. How do I explain to my readers what I do not understand myself? For over eight years I have researched Fibromyalgia and Chronic Fatigue Syndrome (FC/FS). I began this blog as an outlet to share both information and hope with fellow sufferers. On my last blog entry I explained that my diagnosis had changed from FM/CFS to Chronic Lyme disease.
The symptoms for FM/CFS are almost exactly the same as those of Lyme disease. Neither disease has a definitive diagnostic technique.
I sent my tests and reports to Dr. Tietelbaum’s assistant in Maryland for a second opinion. As mentioned in earlier blogs, Dr. Tietelbaum, author of From Fatigued to Fantastic, is the FM/CFS guru in this country. That was over two months ago. I contacted them after one month and inquired about the second opinion. They apologized and said they would look into it, a month later, nothing. I suspect I have been discarded into a slush-pile. I won’t contact them again.
After taking the Ecuadorian microbial herbs that Dr. Kalidas prescribed to kill the Lyme bacteria for five weeks, I had no reaction. Then, Dr. Kalidas put me on colloidal silver. About a week later, I had my first Herzheimer reaction (a die off of bacteria.) Not a fun experience. A sure way to diagnose Lyme is to experience a die off of the bacteria. For the next few days I could not support my body weight, or hardly stand. I could not walk without support. The pain doubled. Dr. Kalidas told me the reaction was definitive proof that I have Lyme disease. He suggested I cut the dose of colloidal silver in half. He also suggested I schedule my next appointment for after he attended a conference on Lyme disease this November. I felt abandoned and confused.
In the meantime, my husband and I continued our online research. The more we looked into Lyme, the more we uncovered the controversy surrounding Chronic Lyme disease. Bottom line, medical doctors don’t want to treat Chronic Lyme. The IDSA, The Infectious Disease Society of America, has pretty much poo-pooed the concept of Chronic Lyme disease. According to the IDSA, a course of high dose antibiotics will cure Lyme. If the symptoms persist, then the patient is no doubt a hypochondriac.
However, many reliable research facilities all over the world have proven that Chronic Lyme does exist. Early detection, with a target shaped rash, can be treated and possibly cured with antibiotics. Undetected Lyme, where the rash is not visible or not noticed, becomes Chronic Lyme. Only 70% of people even get the rash. The longer it goes untreated the deeper the bacteria penetrate into the cells. At that point, killing the bacteria becomes a game of catch me if you can. No doubt my Lyme is Chronic. I have had these symptoms for a decade.
The Lyme bacterium is only vulnerable in the spirochete state. The Lyme bacterium also takes other forms, round bodies or cyst forms. In those states they are impregnable. When the spirochete is attacked it immediately morphs into a round body or cyst form. As a cyst it is indestructible and cannot be killed. So, when the antibiotics start working, the bacteria morphs and the antibiotics are useless. The insidious spirochete waits until the coast is clear, and then it leaves the cyst form and reappears in larger numbers. It multiplies in the cyst form.
Of course, health insurance companies support the IDSA guidelines that antibiotics will work. It appears antibiotics only work in early cases where the rash is visible. We have spoken to Lyme patients who have been through numerous intravenous antibiotics and still suffer relapses. Insurance companies do not want to accept ongoing expensive lifetime treatment plans. So, finding a physician able and willing to treat Chronic Lyme is a challenge.
The award winning documentary film, Under Our Skins, (available on Netflix and online) exposes the controversy in the medical community. Sadly, Lyme disease sufferers are unable to get the help they need in the conventional theater.
However, research by the alternative health communities is moving forward. My husband has made contact through the internet with several individuals who claim to have cured their diseases. Right or wrong, they are eager to share information and help others. After comparing many alternative treatments, we investigated frequency-generating machines, such as the Rife machine and the Doug Coil machine. (You can Google either, the internet is full of information on frequency generation machines.)
The explanation of how these machines work is another whole discourse. Simply put, they generate electronic frequencies. All living organisms contain iron and exist at a certain frequency. Change that frequency dramatically and the organism dies. In the case of Lyme disease, choose the frequency recommended, and the spirochete bacteria will die.
Of course, when the spirochetes die the patient deals with a Herzheimer detoxification reaction. The severity of the illness depends on how many bacteria die and release toxins into the system. Not all of the spirochetes will die. Many will morph into the cyst form and wait out the attack.
The challenge is to know when the spirochete reappears, and hit them with the frequency again, and wait for the reaction. Each time it is expected that the spirochete will diminish until the patient is cured. The system is different with each person. It is a trial and error procedure. You start slow and gradually increase time exposed to the machine and how often you repeat the procedure.
In theory, these machines, (and there are many), can be used for all sorts of illnesses where cells, bacteria, viruses, etc., can be eliminated through frequency generation. The treatment is controversial, and not American Medical Association (AMA) approved. Neither my husband nor myself are physicians or medical experts. We are not qualified to recommend this treatment for anyone.
In the past two months we have spoken to numerous fellow sufferers who claim to be healed through the use of the Coil machine. We are desperate, and made the choice to give it a try for ourselves. I will start using the machine next week. If I am able I will report back on this blog to share the results as they occur.